Perceived quality of life and satisfaction with health care received in a group of terminal cancer patients receiving palliative care in a hospital in Zaragoza, Spain
Keywords:
Quality of life, Palliative care, Cancer, Satisfaction, EORTCAbstract
Background and objective: The aim of this study is to determine the perceived quality of life of terminal cancer patients receiving palliative care, and the influence of health care satisfaction in the quality of life of these patients. EORTC scales were used to collect this information.
Patients and methods: Descriptive cross-sectional study was conducted on 47 terminal cancer patients on palliative care in the Oncology Unit of the «Hospital Clínico Universitario Lozano Blesa», Zaragoza (Spain), during February, March and April 2014. The quality of life and the satisfaction with the health care were evaluated using the EORTC QLQ C15-PAL and EORTC INPATSAT32 questionnaires.
Results: The participants had a mean age of 64 years, and included 57.4% males. All participants had a main support person, being their partner in 74.5% of cases. The most frequent diagnoses were lung, breast and colon cancer. Patients considered they had a good quality of life with a mean of 51.77 points, calculated with EORTC QLQ C15-PAL questionnaire. The satisfaction with health care, calculated with EORTC INPATSAT32, showed a good satisfaction with the medication and nursing care, as well as with the services and organisation, with 57.88, 57.54, and 52.2 points, respectively. In general, patients were very satisfied with the health care provided, with a mean score of 83 points.
Conclusions: The patients obtained a good quality of life, and they were very satisfied with the health care in general, although there was no relationship between the two.
Author Biographies
Estela Hernández-Bello, Hospital Clínico Universitario Lozano Blesa
Hospital Clínico Universitario Lozano Blesa, Zaragoza, España
Manuel Bueno-Lozano, Universidad de Zaragoza
Departamento de Fisiatría y Enfermería. Universidad de Zaragoza, Zaragoza, España
Paola Salas-Ferrer, Servicio de Urgencias y Emergencias 061
Servicio de Urgencias y Emergencias 061, Aragón, España
Manuel Sanz-Armunia, Centro sociosanitario de alta resolución
Centro sociosanitario de alta resolución, Fraga, Huesca, España
References
Espinar Cid V. Los cuidados paliativos: acompañando a las personasen el final de la vida. Cuad Bioét. 2012;23:169-76.
Sociedad Española de Cuidados Paliativos (SECPAL). Guía de Cuidados Paliativos [Madrid]: SECPAL; 2010 [consulta el 10 de noviembre de 2013]. Disponible en: http://www.secpal.com/guiacp/guiacp.pdf.
World Health Organization. Executive summary: national cancer control programmes: policies and managerial guidelines. Geneva: WHO; 2002. [consulta el 10 de noviembre de 2013.] Disponible en: http://www.who.int/cancer.
Toscano Murillo F, Bernabeu Wittel M, Ollero Batoro M. Calidad de vida y características en pacientes oncológicos que recibe cuidados paliativos en un hospital de tercer nivel. Med Pal (Madrid). 2009;16:272-8.
Lucha López AC, Lucha López MO, Tricás Moreno JM, Vidal Peracho C, Estébanez de Miguel E, Bernués Vázquez L. La importancia del trabajo multidisciplinar en los cuidados al enfermo terminal. En: Anales de la Escuela Universitaria de Ciencias de la salud de Zaragoza. 2007;10:111-22.
Hennesy JE, Lown BA, Landzaat L,DO, Porter-Williamson K. Practical Issues in Palliative and Quality-of-Life Care. J Oncol Pract. 2013;9:78-80.
https://doi.org/10.1200/JOP.2013.000896
Smith TJ, Coyne PJ, Cassel JB. Practical guidelines for developing new palliative care services: resource management. Ann Oncol. 2012;23:70-5.
https://doi.org/10.1093/annonc/mds092
Bruera E, Yennurajalingam S. Palliative care in advanced cancer patients: how and when. Oncologist. 2012;17:267-73.
https://doi.org/10.1634/theoncologist.2011-0219
Robles Agudo F, Sanz Segovia F, González Polo J, Beltrán de la Ascensión M, López Arrieta JM. Alivio del dolor como parte de los cuidados al final de la vida. Rev Esp Geriatr Gerontol. 2005;40:357-64.
https://doi.org/10.1016/S0211-139X(05)74884-8
Meier DE, Brawley OW. Palliative care and the quality of life. J Clin Oncol. 2011;29:2750-2.
https://doi.org/10.1200/JCO.2011.35.9729
Parikh RB, Kirch RA, Smith TJ, Temel JS. Early specialty palliative care-translating data in oncology into practice. N Engl J Med. 2013;369:2347-51.
https://doi.org/10.1056/NEJMsb1305469
Cowall DE, Yu BW, Heineken SL, Lewis EN, Chaudhry V, Daugherty JM. End-of-Life care at a community cancer center. J Oncol Pract. 2012;8:40-4.
https://doi.org/10.1200/JOP.2011.000451
Dyar S, Lesperance M, Shannon R, Sloan J, Colon Otero G. A nurse practicioner directed intervention improves the quality of life of patients with metastatic cancer: results of a randomized pilot study. J Pall Med. 2012;15:890-5.
https://doi.org/10.1089/jpm.2012.0014
Turriziani A, Attanasio G, Cogliandolo S, Scarcella F, Sangalli L, de Gennaro E, et al. Improving the quality of life of terminally ill oncological patients: the example of palliative care at Hospice Villa Speranza. Future Oncol. 2013;9:771-6.
https://doi.org/10.2217/fon.13.59
Nabal Vicuña M, Palomar Naval C, Trujillano Cabello J, Juvero Sancho MT, Jiménez Vilchez A, Mariné Jove P. Calidad de vida y cuidados paliativos: ¿qué dimensiones podemos mejorar? Med Pal (Madrid). 2008;15:351-6.
Sanz Rubiales A, Blanco Toro L, Librada Flores S, Julián Caballero MM, del Valle Rivero ML, Rocafort Gil J. El concepto de calidad de vida en los profesionales de Cuidados Paliativos. Med Pal (Madrid). 2008;15:165-70.
Ribeiro Correira F, Rodrigues do Prado de Carlo MM. Evaluación de la calidad de vida en contexto de los cuidados paliativos: revisión integradora de literatura. Rev Latino-Am. Enfermagen. 2012;20.
Catania G, Costantini M, Beccano M, Bagnasco A, Sasso L Does quality of life assessment in palliative care look like a complex screening program? Health Qual Life Outcomes. 2013;11:1-8.
https://doi.org/10.1186/1477-7525-11-7
Groenvold M, Petersen MA, EORTC Quality of Life Group. Scoring of the EORTC QLQ-C15-PAL. 2006.
https://doi.org/10.1007/s11136-005-3214-z
Brédart A, Bottomley A, Blazeby JM, Conroy T, Coens C, Haese SD, et al. An international prospective study of the EORTC cancer in-patient satisfaction with care measure (EORTC INPATSAT32). Eur J Cancer Care. 2005;41:2120-31.
https://doi.org/10.1016/j.ejca.2005.04.041
Groenvold M, Petersen MA, Aaronson NK, Arraras JL, Blazely JM, Bottomley A, et al. The development of the EORTC QLQ-C15- PAL: a shortened questionnaire for cancer patients in palliative care. Eur J Cancer. 2006;42:55-64.
https://doi.org/10.1016/j.ejca.2005.06.022
Pita Fernández S, Pértega Díaz S, López Calviño B, Seoane Pillado T, Gago García E, Seijo Bestilleiro R, et al. Diagnostic and treatment delay, quality of life and satisfaction with care in colorectal cancer patients: a study protocol. Health Qual Life Out. 2013;11:117-23.
https://doi.org/10.1186/1477-7525-11-117
Balderas Peña LMA, Sat Muñoz D, Contreras Hernández I, Solano Murillo P, Hernández Chávez GA, Mariscal Ramírez I, et al. Análisis de la Satisfacción con los Cuidados en Salud a través del cuestionario EORTC IN-PATSAT32 en pacientes con Cáncer de Mama, Linfoma no Hodgkin y Cáncer Colo-Rectal en diferentes etapas clínicas. Relación con las características socio-demográficas, estados co-mórbidos y variables del proceso de atención en el Instituto Mexicano del Seguro Social. Value Health. 2011;14:96-9.
https://doi.org/10.1016/j.jval.2011.05.026
Memorias Actividad Asistencial 2014, Hospital Clínico Universitario Lozano Blesa, Zaragoza. Web intranet del sistema sanitario.
Koo K, Kerba M, Zeng L, Zhang L, Chen E, Chow E, et al. Quality of life in patients with brain metastases receiving upfront as compared to salvage stereotactic radiosurgery using the EORTC QLQ-C15-PAL and the EORTC QLQ BN20 + 2: a pilot study. J Radiat Oncol. 2013;2:217-24.
https://doi.org/10.1007/s13566-012-0052-9
Hermann K, Engeser P, Szecsenyi J, Miksch A. Palliative patients cared for at home by PAMINO-trained and other GPs-healthrelated quality of life as measured by QLQ-C15-PAL and POS. BMC Palliat Care. 2012;11:1-7.
https://doi.org/10.1186/1472-684X-11-13
Brédart A, Coens C, Aaronson N, Chie WC, Efficace F, Conroy T, et al. Determinants of patient satisfaction in oncology settings from European and Asian countries: Preliminary results based on the EORTC IN-PATSAT32 questionnaire. Eur J Cancer Care. 2007;43:323-30.
https://doi.org/10.1016/j.ejca.2006.10.016
Arraras JI, Vera R, Martínez M, Hernández B, Laínez N, Rico M, et al. The EORTC cancer in-patient satisfaction with care questionnaire: EORTC IN-PATSAT32. Validation study for Spanish patients. Clin Transl Oncol. 2009;11:237-42.
https://doi.org/10.1007/s12094-009-0346-6
Globocan.com, GLOBOCAN 2012: Estimated Cancer Incidence, Mortality and Prevalence Worldwide in 2012: IARC CancerBase [sede Web]. Lyon (Francia): International Agency for Research on Cancer (IARC); 2014. [consulta el 21 de mayo de 2014]. Disponible en: http://globocan.iarc.fr/Pages/bar_sex_pop_prev_sel.aspx.
Buda A, Cuzzocrea M, Montanelli L, Passoni P, Bargossi L, Baldo R, et al. Evaluation of patient satisfaction using the EORTC IN-PATSAT32 questionnaire and surgical outcome in single-port surgery for benign adnexal disease: observational comparison with traditional laparoscopy. Diagn Ther Endosc. 2013:1-5.
https://doi.org/10.1155/2013/578392
Jayasekara H, Rajapaksa L, Brédart A. Psychometric evaluation of the European Organization for Research and Treatment of Cancer in-patient satisfaction with care questionnaire (Sinhala version) for use in a South-Asian setting. Int J Qual Health Care. 2008;20:221-6.
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